australian patient advocacy alliance
chronic disease advocacyspecialist with patient

Who we are

About the Australian Patient Advocacy Alliance

Bridging the gap in Australian healthcare

Working towards accessible care for all

There are over 12 million people living with complex or chronic disease in Australia. At the APAA, we’re dedicated to enhancing the care and quality of life of every single one of them.

We do that by collaborating with national health organisations to understand the real needs of patients, then working to streamline communication, systems and submissions to ensure patient voices are at the forefront of key government decisions.

As a not-for-profit organisation, the APAA works above the disease to offer equal support to all national patient bodies. Combining our broad experience with the specialist expertise of our members, together we can influence positive change for millions of patients who live with chronic and complex conditions across Australia.

Join us today and be part of a better future for Australian healthcare.
Apply for membership

Our people

Governed by a voluntary Board and supported by an Executive Officer, the APAA has implemented a lean, efficient business model that includes incorporation as a not-for-profit, allowing us to operate independently and receive funding from a variety of sources.
deidre mackechnie

Deidre Mackechnie

Executive Officer

With a passion for the importance of the patient voice in federal policy, Deidre has held several senior management and executive roles within the public health sector, as well as gaining invaluable experience in the not-for-profit space as former CEO of Multiple Sclerosis Australia.

Our Board

Leanne Raven

Board Chair, APAA
CEO Crohn's & Colitis Australia

Leading Crohn's & Colitis Australia since 2018, Leanne’s focus is on advocacy and delivering transformative healthcare services, drawing on her expertise in leadership, strategy, and governance. Under her leadership, underpinned by her passion for visibility in healthcare and patient empowerment, the team have pioneered support systems and championed quality care improvements for over 100,000 Australians living with IBD.

Crohn’s and Colitis Australia is a member of the Australian Patient Advocacy Alliance and Leanne joined the APAA Board in February 2023.

Carolyn Dews

Director and Chair of Advocacy Working Group, APAA
CEO Immune Deficiency Foundation Australia (IDFA)

Carolyn is a dynamic and experienced professional, passionate about working with people to achieve outstanding organisational results underpinned by significant experience working across a range of industry sectors.  Since joining IDFA in 2020, she has used her strong experience in strategic planning and implementation, project management, organisational change, and exceptional communication and interpersonal skills to lead IDFA in the health advocacy space.

IDFA is a member of the Australian Patient Advocacy Alliance and Carolyn joined the APAA Board in February 2023.

Jonathan Smithers

Director, APAA
CEO Arthritis Australia

Jonathan was appointed as CEO of Arthritis Australia in 2020. He has led the organisation with skills and experience gained throughout a highly successful legal career over 30 years, including in private practice, a term as President of the Law Society of England, Wales and latterly CEO of the Law Council of Australia. With a track record in using strategic goals to drive change and performance, Jonathan manages a highly experienced and dynamic team in advocating for people living with arthritis.

Arthritis Australia is a member of the Australian Patient Advocacy Alliance and Jonathan joined the APAA Board in October 2024.

Sandy Kervin

Director, APAA
CEO Save Our Sons Duchenne Australia

Sandy has spent more than 25 years working in the community not for profit sector leading three wonderful organisations with a focus on community development, rare disease, disabilities and women’s health and safety.  Sandy was appointed as the CEO of Save Our Sons Duchenne Australia in 2021.

Save Our Sons Duchenne Australia is a member of the Australian Patient Advocacy Alliance and Sandy joined the APAA Board in October 2024.

Anne Wilson

Director, APAA
CEO Emerge Australia

An extensive career largely as a leader in the not-for-profit sector encompassing senior executive and director roles including 5 years as CEO Asthma Australia and over 13 years as Managing Director / CEO at Kidney Health Australia.  Anne also ran her own consulting business and was appointed CEO of Emerge Australia in 2021.

Emerge Australia is a member of the Australian Patient Advocacy Alliance and Anne joined the APAA Board in October 2024.

Our constitution

Our constitution provides the Member organisations and the Board with clarity as to the governance requirements of APAA.
Access and download our constitution.

Our members

Member organisations of the APAA

APAA membership is open to all national peak health organisations that focus on advocacy for complex and chronic disease. Our current membership organisations include:
Arthritis Australia
ausee
cancer-voices-australia
Collective-for-Action-on-Obesity
Crohns-and-Colitis-Australia
Cystic-Fibrosis-Australia
Diabetes-Australia
Dragon-Claw
Eczema-Support-Australia
Endometriosis-Australia
Haemophilia-Foundation-Australia
The-Heart-Foundation
Immune-Deficiencies-Foundation-Australia
Kidney-Health-Australia
Leukaemia-Foundation
Leukodystrophy-Australia
ung-Foundation-Australia
Lymphoma-Australia
Macular-Disease-Foundation-Australia
MS-Australia
Ovarian-Cancer-Australia
Pain-Australia
Rare-Cancers-Australia
Rare-Voices-(Rare-diseases)
Save-our-Sons-Duchenne-Foundation
Spinal-Muscular-Atrophy-Australia

Contact us to check your eligibility and join the Australian Patient Advocacy Alliance.

contact us

Our funding partners

abbvie
merck
novo nordisk
roche
sanofi
takeda
vertex
© Australian Patient Advocacy Alliance 2024. All rights reserved.